Stefanie Cybulski

Firstly, I want to express my gratitude to everyone who has kept Jordan in their thoughts and prayers. It's been a while since I could say we're finally noticing some positive changes. On August 27, 2025, Jordan underwent a partial corpus callosotomy. During the 10-hour procedure, his incredible team successfully disconnected the anterior section of his corpus callosum using laser ablation. Jordan's recovery has been remarkable. Jordan faced quite a challenge as he worked to recover and...

I haven't updated this blog since 2023, and revisiting the posts evokes a mix of emotions. I feel sad because, back then, there was still...

December 1-7 is Infantile Spasms awareness week. Ironically, Jordan was born during IS week and we didn’t even know it. Part of my brain...